One Month With Our Miracle: An Update on Lily Grace

<p data-start&equals;"285" data-end&equals;"391"><strong data-start&equals;"285" data-end&equals;"389">Today marks a deeply emotional milestone—one month since our precious Lily Grace entered this world&period;<&sol;strong><&sol;p>&NewLine;<p data-start&equals;"393" data-end&equals;"587">Her arrival was nothing short of a miracle&period; From the very beginning&comma; doctors were uncertain if she would make it this far&period; Yet&comma; here she is—strong&comma; beautiful&comma; and continuing to fight each day&period;<&sol;p>&NewLine;<p data-start&equals;"589" data-end&equals;"734">But as much as we celebrate this one-month milestone&comma; we also write today with heavy hearts and a plea for your continued thoughts and prayers&period;<&sol;p>&NewLine;<p data-start&equals;"736" data-end&equals;"1100">Recently&comma; we had a very difficult conversation with Lily’s medical team&period; While she is currently breathing on her own&comma; the doctors remain cautious&period; Due to the structure of her nose and the narrowness of her airway&comma; they are hesitant to remove her breathing tube&period; There is a very real concern that she may require a <strong data-start&equals;"1050" data-end&equals;"1066">tracheostomy<&sol;strong> and ongoing ventilator support&period;<&sol;p>&NewLine;<p data-start&equals;"1102" data-end&equals;"1339">Even more concerning is that Lily has begun experiencing frequent small seizures&period; Sometimes&comma; during these episodes&comma; she forgets to breathe entirely&period; These seizures have been challenging to manage and are clearly causing her discomfort&period;<&sol;p>&NewLine;<p data-start&equals;"1341" data-end&equals;"1505">Right now&comma; we are facing one of the hardest decisions any parent could imagine—whether to proceed with a complex surgery or to consider letting her go peacefully&period;<&sol;p>&NewLine;<p data-start&equals;"1507" data-end&equals;"1746">We are holding onto hope&period; We’re praying deeply and asking for everyone reading this to join us in those prayers—that if it is part of a greater plan&comma; Lily will soon breathe freely on her own&comma; and her seizures will become more manageable&period;<&sol;p>&NewLine;<p data-start&equals;"1748" data-end&equals;"1892"><strong data-start&equals;"1748" data-end&equals;"1890">Thank you from the bottom of our hearts for your love&comma; your strength&comma; and your prayers&period; Please keep our sweet Lily Grace in your thoughts&period;<&sol;strong><&sol;p>&NewLine;<hr data-start&equals;"1894" data-end&equals;"1897" &sol;>&NewLine;<p data-start&equals;"1899" data-end&equals;"1966"><strong data-start&equals;"1899" data-end&equals;"1917">&num;TeamLilyGrace<&sol;strong><br data-start&equals;"1917" data-end&equals;"1920" &sol;><em data-start&equals;"1920" data-end&equals;"1966">&num;MiracleBaby &num;PrayersForLily &num;OneMonthStrong<&sol;em><&sol;p>&NewLine;